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Navigating Housing Options for Seniors: A Comprehensive Guide

Choosing housing for older adults can be tricky because of all the different nomenclature used. When clients call an Aging Life Care professional, they usually have no knowledge of how each type of housing differs, or worse, they think a nursing home is the only real option for their loved one.  

Kira Reginato, an experienced Aging Life Care Manager with over three decades of experience, offers valuable insights into navigating this complex topic. 

This guide will help families understand the various housing options available for seniors and provide practical advice to make informed decisions.

 

Understanding Housing Options

1. Age in Place

    • Description: This option involves remaining in your current home, and making modifications to accommodate needs which may accompany getting older. It offers familiarity.
    • Ideal For: Seniors who are relatively healthy and independent and who want to preserve familiar surroundings and social connections and maintain their lifestyle for as long as possible. 
    • Considerations: Can your home be adapted to meet future needs (e.g., shower access, ramps instead of stairs, burners that turn off automatically)? Can you maintain the home and yard? Do you have a support system in place for assistance with daily tasks? Can you afford necessary modifications or in-home care?
    • Costs: Vary widely depending on the extent of modifications needed, in-home care services required, and property taxes. 

2. Independent Living 

      • Description: Independent living communities offer a hotel-style experience with weekly housekeeping, meals, and a sense of community. They do not require a license and often provide transportation and activities. Assistance with personal care must be hired privately.
      • Ideal For: Active seniors who seek a supportive environment without intensive assistance.
      • Considerations: Do you have funds to stay here and hire care if needed? Can you accept the fact that you may need to move to another home?
      • Costs: Vary depending on amenities and structure of the home, and some may have a move-in fee.

3. Assisted Living / Residential Care Facility (AL or RCFE)

    • Description: Licensed and monitored by the Dept. of Social Services, assisted living facilities provide help with daily activities, such as bathing, dressing, and medication management. They offer housekeeping, meals, laundry, activities, and personal care. Accommodations vary from apartments to private or shared rooms.
    • Ideal For: Seniors who need some assistance but want to be free of day to day chores like shopping, meal prep and cleaning.  
    • Considerations: Do you wish to be in a setting where you’re around people who may be healthier or frailer than you are?  Can you afford to remain here for several years? Ask to speak to at least one family member who has a loved one living there now.
    • Costs: Most require a one-time move-in/application fee, and rent is charged per month. Some long-term care insurance policies help pay costs. Ask about rent assistance programs for low-income individuals or if assets are running low.

4. Board and Care Homes

    • Description: These are smaller-scale assisted living homes (6-10 residents), also licensed by the Dept. of Social Services and are often family-run businesses. They provide similar services to larger assisted living facilities, including housekeeping, meals, laundry, limited activities, medication management, and personal care.
    • Ideal For: Seniors who prefer a more intimate, home-like environment. Good option for those requiring more supervision and 1-1 assistance throughout the day or night.
    • Considerations: Sometimes these facilities have less privacy and fewer amenities. Ask to speak to at least one family member who has a loved one living there now.
    • Costs: Most charge a move-in fee, which is usually less than what a corporate assisted living home charges. Rent is month-to-month, and extras may be added on, such as costs for incontinent supplies or transport. Some long-term care insurance policies may help pay costs.

5. Assisted Living with Dementia Care

    • Description: These facilities are licensed and monitored by the Dept. of Social Services and are required to have a plan of operation to serve those with memory impairment. They provide the same services as standard assisted living but with additional staff training and secure walking areas for residents with memory loss and cognitive impairment.
    • Considerations: It’s important to observe how staff treat existing residents and to ask about their number of years experience in dementia care. Ask/observe the availability of activities and programs so residents are engaged. Ask to speak to at least one family member who has a loved one living there now.
    • Ideal For: Seniors with dementia or other cognitive impairments who require specialized care.
    • Costs: Rent is charged month-to-month, similar to other assisted living facilities. Most charge a move-in fee, and extras may be added on, such as costs for incontinent supplies or transport. Some long-term care insurance policies may help pay costs.

6. Post-Acute Care (Skilled Nursing Facilities or Rehab Center)

    • Description: Licensed and monitored by the Dept. of Health Services, these facilities provide 24-hour skilled nursing care, rehabilitation services such as physical, occupational, and speech therapy, and full personal care.
    • Ideal For: Seniors recovering from surgery or illness who need intensive medical care.
    • Considerations: It is difficult to remain long term in this setting as most post-acute facilities are geared for short term rehab stays. Do you have an advocate to help get your needs met as a resident and also help with your discharge?
    • Costs: Medicare covers costs only if there is a skilled care need. Medicaid pays for room, board, and services for those who cannot pay privately but finding a bed that is covered by Medicaid is arduous. Some long-term care insurance policies help pay costs.

7. Continuing Care Retirement Communities (CCRCs)

    • Description: CCRCs provide multiple levels of care, up to four. Levels may include independent, assisted, memory care, and skilled nursing. They offer housekeeping, meals, laundry, activities, medical appointments, medications, and personal care.
    • Ideal For: Seniors who want to age in place with varying levels of care available as needed.
    • Considerations: Do you have the assets to afford this option? Is being able to remain here forever what you wish? What is the reputation for each level of care? Ask to speak to at least one resident who lives there now.
    • Costs: Most have a large buy-in fee, month-to-month rent, and a contract to sign. Sometimes the move-in fee can revert to the estate.

 

Involving Aging Loved Ones in the Decision-Making Process

It’s essential to involve aging loved ones in the decision-making process to ensure their preferences and needs are respected. Here are some steps to facilitate this:

  • Open Communication: Initiate honest conversations about preferences and fears regarding housing. Include cost considerations so a budget can be formed that is realistic.
  • Inclusion in Research: Explore housing options together, or better yet, visit many and then bring your loved one to visit your top two or three choices. 
  • Respect Autonomy: Honor their choices, even if they differ from yours, and empower them to make decisions.
  • Consult Professionals: Seek advice from Aging Life Care Managers, sometimes referred to as geriatric care managers, or local area agency on aging. 
  • Regular Check-Ins: Keep the conversation ongoing as needs evolve.

 

Nine Things to Consider When Evaluating Your Home for Aging in Place

Before exploring external housing options, you may wish to evaluate if the current home is suitable for aging in place. Here are nine key considerations:

1. Accessibility: Assess how easy it is to get in and out of your house or move between floors. Consider safety features like non-slip flooring, grab bars, ramps, and widened doorways.

2. Proximity to Medical Services: Ensure that you have easy access to medical professionals and facilities. This proximity is crucial for regular check-ups and emergencies.

3. Availability of Services: Check if  grocery and supply shopping is nearby and/or if delivery service is available.

4. Support Networks: Evaluate the types of support networks you have nearby, such as family, friends, or community groups. A robust support system can significantly enhance your quality of life.

5. Outdoor Safety: Determine if you can walk outside safely. Look for well-maintained sidewalks, walking paths, and areas where you can walk with friends.

6. Home Maintenance: Explore options for assistance with yard work, cleaning, and repairs.

7. Technology: Utilize smart home devices for security, communication, and convenience.

8. In-Home Care: Research and prepare for services for assistance with daily living activities. There may be a four-hour minimum required. 

9. Emergency Preparedness: Develop a plan for emergencies, including medical alerts and evacuation procedures. 

Aging Life Care Manager

 

Beyond Housing: The Role of Aging Life Care Managers

Navigating elder care can be overwhelming. Aging Life Care Managers offer invaluable support by:

  • Creating Personalized Care Plans: They assess needs and preferences to curate a plan promoting well-being.
  • Coordinating Care: They can manage appointments, in-home care, and medication, ensuring seamless care.
  • Providing Emotional Support: They guide and support seniors and their families through the decision-making process.
  • Trusted Referrals: They offer expert guidance, leveraging deep knowledge of local resources and service access to find the ideal care solution. Their commitment to ethical standards ensures unbiased recommendations tailored to your specific needs.

Finding an Aging Life Care Manager To find a qualified Aging Life Care Manager, visit the Aging Life Care Association’s website at aginglifecare.org and use the “Find an Aging Life Care Expert” tool.

Kira’s reflections, “Embrace the journey and don’t be afraid to seek support when needed.”

Advice for Seniors

 

 

Navigating Housing Options for Seniors

There are many things to consider when choosing the best place to call home, including cost, location, amenities and services, safety, and comfort. 

Finding the ideal housing option for seniors can be a complex and overwhelming task. By understanding the available options and seeking guidance from professionals like Aging Life Care Managers, you can ensure a smooth transition and continued well-being for your loved one. We hope this guide empowers you to make informed decisions for a brighter future. 

About the Author: Kira Reginato, BA CMC founded Living Ideas for Elders and is an Advanced Professional Member of the Aging Life Care Association.  As an Aging Life Care Manager and consultant, Kira has served hundreds of older adults and their families in a variety of settings, including hospitals, residential care facilities, skilled nursing places, hospices, Alzheimer’s adult day care programs and Meals on Wheels. She enjoys public speaking and published, Tips for Helping Your Aging Parents . . . Without Losing Your Mind, now in its third edition.

 

Disclaimer: This blog is for informational purposes only and does not constitute, nor is it intended to be a substitute for, professional advice, diagnosis, or treatment. Information on this blog does not necessarily reflect official positions of the Aging Life Care Association® and is provided “as is” without warranty. Always consult with a qualified professional with any particular questions you may have regarding your or a family member’s needs.

The Sandwich Generation – what is it and are you a member

Written By: Lonette Bolden-Smith, MA, BSN, RN, CMC

Are you an adult in your 30’s, 40’s or 50’s and struggling with your home and working-life balance while tasked with taking care of an aging adult? Maybe you are in your 60’s and struggling to care for a parent in their 80’s or 90’s while trying to take care of yourself, your spouse, focus on retirement, and helping your kids who are now older. If yes, the you are a part of  the “sandwich generation” – it is more of a phase of life than a literal generation – it is an ongoing experience. I brushed off being a member of the sandwich generation until the year of 2014 when I lost my dad. I found myself not only overwhelmed with grief, but also with worry about my household, my job, and my mom who lived hours away. I remembered reading about the sandwich generation in previous years but now reality set in. I was sandwiched between a lot of dynamics and felt pulled in many different directions.

So how do I handle being in the sandwich generation? My siblings and I have labeled my mom “The Eagle”. We are all busy in our lives, but we manage to stay in the know with what is going on with The Eagle whether it be through telephone calls, video chats, or texts. I told The Eagle that one day we may have to hire someone, like an Aging Life Care Professional, to help provide more oversight. The Eagle is already not a fan of this idea, but The Eagle also wants to be an independent, free bird as long as possible. This may require her to accept help to maintain a level of independence in the future. Trust me, I am not looking forward to clipping any of her wings and I want her to continue to fly and age in place gracefully, which is the goal of many older adults today.

How do you handle being a part of the sandwich generation?

I’m here to share that guilt is real. Anger, frustration, and feeling lost or helpless are all real, valid emotions. You are human. I am a professional who has worked in the health and human services field for over 20 years. I specialize in helping people navigate challenges and I admit that I am not perfect and have struggled myself. I too have to take deep breaths, go for long walks, listen to my relaxation music station, etc. when things get overwhelming. I have had my true moments of being a struggling member of the sandwich generation.  However, I have found my balance and am now a functioning member of the sandwich generation.

Being an Aging Life Care Professional is rewarding for me. Most people meet an Aging Life Care Manager  and say, “I didn’t know this existed.” I happily share that I am a member of the Aging Life Care Association®. We are here to help manage and navigate. I help people that are struggling with being in the sandwich generation just as I have. If you are a member of the sandwich generation, ask yourself how are you managing? If the answer is “I’m not,” I encourage you to reach out for help. Believe me when I say you are not alone and there is a way to move from struggling to functioning. Your sandwich may look different from someone else’s sandwich, but the struggles may be similar. There is a way to find your balance when taking care of yourself while caring for your Eagle or Eagles.  

 

Thankfully, there are articles, YouTube videos, and groups such as AARP that provide information on the sandwich generation, and there are Aging Life Care Professionals that can help. The following is a link to an article from Newsweek entitled Why the Forgotten Sandwich Generation are Surviving but ‘Not Really Living’. 

 

Most people meet an Aging Life Care Manager  and say, “I didn’t know this existed.” I encourage you to reach out for help. Believe me when I say you are not alone and there is a way to move from struggling to functioning.

 

About the author: Lonette Bolden-Smith, MA, BSN, RN, CMC is a Care Manager/Advanced Aging Life Care Professional and founder of LH Care Management. She has a Master Degree in Counseling, a Bachelor of Science in Psychology, a Bachelor of Science in Nursing, and is a CMC (Care Manager Certified) by the National Academy of Certified Care Managers. Lonette works with older and/or disabled adults throughout Central Florida. She has over 20 years of experience in working with older adults in this area and is familiar with many resources. Lonette specializes in helping individuals age in place, navigate the complexities of the healthcare system, advocating for clients in care facilities, providing local support for long-distance caregivers, and much more. As a nurse, she enjoys providing support and education on disease processes and medication, assisting with medication management in the home, and ensuring proper medical care and follow up. Lonette considers herself a life-long learner and truly enjoys what she does for a living.

Turkey with a Side of Sibling Conflict

The fight over the last piece of pumpkin pie  may not be the only struggle this Thanksgiving. As families gather around the table, many will have the difficult conversations of how to care for mom or dad.  These conversations can be emotionally charged and test sibling bonds.

How to Overcome & Manage Sibling Conflict with Aging Parents

by Debra D. Feldman, MSW, LCSW, CMC, Aging Life Care Association Member

 

It is hard enough to get past your emotions when caring for your parents while trying to make the “right” decisions on their behalf.  It becomes more difficult when there is conflict among the adult siblings.  How does a family overcome sibling conflict when caring for aging parents?

Communication is Key

When a crisis hits, siblings should come together and hold a meeting in a neutral location, a place everyone feels welcome. This meeting is most productive when siblings can find common ground in the love they feel for their parent(s) and in their collective desire to provide the best care.  The siblings should prepare an agenda for the meeting and each sibling should be encouraged to share his/her opinions.

Remove Expectations

It is important to realize that some family members might not participate, and that all family members may not be able to take on an equal role in caregiving responsibilities.  Each sibling needs to identify what he/she can do to help and then a plan of care can be developed incorporating each family member’s availability.  Avoid bringing up past sibling conflicts. Instead, focus the conversation on the situation at hand.  It will likely take more than one meeting to come to a complete resolution.

Bring in a Facilitator

When there is tension, an outside, third-party facilitator may be needed to facilitate a family meeting. This provides for a neutral, objective and less emotional opinion. The facilitator can help make sure all siblings are heard during the meeting and can help develop an appropriate care plan that includes input of all parties.

This objective participant can be a member of the clergy, a social worker, or another professional who specializes in the field of aging such as an Aging Life Care Professional™.  An Aging Life Care Professional – also known as a geriatric care manager – has specific expertise in the care of older adults.  This expert is able to provide education and resources, as well as outline the various care options available to the family. In the end, the Aging Life Care Professional can help the family develop and implement an appropriate and affordable plan of care.

Plan Ahead

Having a conversation between parents and adult children well in advance of a crisis can help avoid or reduce sibling conflict. When parents are healthy, they should talk to their children about their wishes regarding their future health care. The conversation should include areas of concern such as organ donation, kidney dialysis, artificial nutrition and hydration, cardiopulmonary resuscitation and use of artificial ventilators.  The talk should also include discussion regarding their living environment as well as their wishes concerning their funerals.  All of this information should be put in writing at the time of that talk.

Parents should also discuss with their children how they plan to finance their long-term care.  Additionally, legal documents such as a Power of Attorney for Health Care and for Property should be executed with an elder law attorney and the identified representatives should be notified of their roles.  This information should be shared with all children to avoid conflict.

When parents share their wishes ahead of time, adult children don’t have to make these health care choices blindly.  Instead, the children have a written guide, provided by their parents, that takes the guesswork out of caregiving and end-of-life decision-making.

To find an Aging Life Care Professional to work with in your area, use this Find an Aging Life Care Expert tool.

About the author: Debra Feldman has 35 years of experience in Aging Life Care Management and is the owner of Debra D. Feldman & Associates, Ltd. in Buffalo Grove, Illinois.  Email Debra at dfeldman@ddfcaremanagement.com and visit her website at ddfcaremanagement.com.


This blog is for informational purposes only and does not constitute, nor is it intended to be a substitute for, professional advice, diagnosis, or treatment. Information on this blog does not necessarily reflect official positions of the Aging Life Care Association™ and is provided “as is” without warranty. Always consult with a qualified professional with any particular questions you may have regarding your or a family member’s needs.

Aging Life Care Manager can help in emergency situations

Supporting Family Caregivers with Burnout

Aging Life Care Professionals™ Help You Avoid the Pitfalls of Caregiving

by Jullie Gray, DSW, MSW, LICSW, CMC — Aging Life Care Association™ Member and Fellow of the Leadership Academy

 

Caregiving for an aging loved one can be both rewarding and challenging. Unpaid family members who provide substantial caregiving support by managing medical appointments, medications, and daily care often experience emotional, physical, and financial strain. Family caregivers can also be less productive at work because of the stress and fatigue of their care responsibilities.

Aging Life Care Professionals offer crucial support to help families avoid these common pitfalls. They assist caregivers in navigating local resources, finding respite options, and connecting with helpful community services. These professionals also help families set healthy boundaries, mediate conflicts, and facilitate open communication, supporting everyone through the transitions of aging.

Without taking time to set limits and find balance, caregivers can be at risk of burnout. Aging Life Care Professionals provide valuable resources and coaching to help caregivers recognize the signs of burnout and prevent it before it affects well-being.

If you’re feeling overwhelmed due to your caregiving responsibilities, consider taking our “Burnout Quiz” to see if your flame is about to fizzle. Remember, you don’t have to do this alone – Aging Life Care Professionals are here to help.

Are You Burned Out From Caregiving?
True, this describes my situation most of the time. False, this isn’t the case in my situation.
1. I feel emotionally drained because of my caregiving duties.
2. I’ve developed a negative attitude.
3. I feel stressed out more often than not.
4. I have more medical problems as a result of being a caregiver.
5. I feel more depressed and/or anxious than before I became a caregiver.
6. I’m not successful as a caregiver.
7. I have trouble sleeping at night.
8. I feel all alone—no one helps me.
9. I have trouble making time for myself and taking a break.
10. I feel trapped in my caregiver role.
11. I feel hopeless and as if there is no help for my situation.
12. I’ve become angry & frustrated and sometimes take my anger & frustration out on the person I care for.

The more items you answered “TRUE” to in the Burnout Quiz, the higher the likelihood that you are experiencing burnout! Even if you responded “TRUE” to just one question, you will benefit from additional help in your care-taking responsibilities.

To learn more about caregiver burnout and how to find the help you need to manage the stress, download this white paper from the Aging Life Care Association™.

Aging Life Care Managers can help with Caregiver Burnout

 

More resources from the Aging Life Care Association

Caregiver Guide: Do’s and Don’ts for Engaging Loved Ones with Cognitive Decline by Lisa Kaufman, MS, CMC, CTRS, C-EOLD Caring for an older adult with cognitive difficulties, such as dementia or Alzheimer’s disease, requires patience, empathy, and a thoughtful approach to daily activities. Recommended reading for family caregivers.

Six Steps to Living Well While Caring for Aging Parents by Linda Fodrini-Johnson, MA, MFT, CMC : A reminder may be in order that equilibrium is the key to living well as we divide our time among the needs of our parents, children, partners, jobs, and ourselves. The pull to care, or over care, often knocks that balance of its feet. Download a copy of this eBook and discover six steps that will help bring balance back to your life as a caregiver.

Planning for the Care You Need at Home by Phyllis Mensh Brostoff, CISW, CMC: This e-book covers some of the aspects of getting care when the time comes, how to get that help, and how your family can arrange for help when you might not be able to make some decisions for yourself. It shares stories to demonstrate and bring to life these issues.

An expert like an Aging Life Care Professional™ who has both compassion and years of experience can help you develop a workable self-care plan and find the support you need. Find your very own Aging Life Care™ expert at aginglifecare.org.

About the author: Jullie Gray, DSW, MSW, LICSW, CMC has over 30 years of experience in healthcare and aging and is a Fellow of the Leadership Academy of the Aging Life Care Association. She is also a past president of the National Academy of Certified Care Managers and the Aging Life Care Association.

Helping Seniors Age in Place: Identifying Functional Issues and Solutions

Aging in place offers seniors the comfort and familiarity of their own homes, but it comes with its own set of challenges.

Addressing functional issues within the home environment is crucial to supporting seniors’ desires to live independently while ensuring their safety and well-being. In this blog post, we’ll explore common functional issues that can lead to moving to a care facility, offer practical solutions, and explain how an Aging Life Care Managers® can assist in creating a safer and more supportive home environment.

Aging Life Care Managers are dedicated to helping seniors age in place by providing personalized assessments, care plans and access to resources that promote independence and well-being.

Statistics Highlighting the Importance of Aging in Place

A significant number of older Americans prefer to remain in their homes as they age. According to a 2023 AARP survey, 77% of adults aged 50 and older want to stay in their current homes and communities as they age (AARP, 2023). However, functional issues can pose serious risks. For instance, falls are a major concern, with about one in four older adults experiencing a fall each year (CDC, 2023). Additionally, 68% of older adults report needing assistance with daily activities such as bathing and dressing, which underscores the need for appropriate home modifications and support (NIA, 2023).

Helping Seniors Age in Place

The Need for Personalized Assessment and Planning

To effectively support aging in place, a personalized assessment and care plan are essential. An Aging Life Care Professional® provides invaluable assistance by conducting a thorough evaluation of the home environment to identify specific risks and needs. This personalized assessment helps in developing customized care plans and recommending the most appropriate home modifications and safety equipment. By coordinating various services, from home health care to community resources, these professionals ensure a holistic approach to care. Their ongoing support involves continuous monitoring and adjustments to care plans as needs evolve. The Aging Life Care Association® highlights the critical role of these professionals in managing the complex needs of aging individuals and ensuring a safe, comfortable living environment.

Getting the Care You Need at Home
Free E-Book Planning for the Care You Need at Home

 

Common Functional Issues and Solutions

1. Risk of Falls

Issue: Falls are a leading cause of injury among older adults, with about one in four older adults falling each year (CDC, 2023). Factors contributing to falls include uneven flooring, poor lighting, and mobility limitations.

Solution: Implementing safety modifications such as installing grab bars, removing tripping hazards, and improving lighting can significantly reduce fall risks. Additionally, using non-slip mats and securing loose rugs can help create a safer environment. The Centers for Disease Control and Prevention (CDC) emphasizes that these changes are essential in preventing falls and related injuries (CDC, 2023).

2. Need for Assistance with Personal Care

Issue: As seniors age, they may require assistance with personal care tasks such as bathing, dressing, and toileting. Difficulty performing these tasks can lead to safety risks and a diminished quality of life.

Solution: Installing grab bars in the bathroom, using shower chairs, and ensuring that essential items are within easy reach can help. In-home care services can also provide personal assistance, including help with daily activities and hygiene. According to the National Institute on Aging, modifying the home and accessing professional help can greatly improve safety and comfort (NIA, 2023).

3. Cognitive Decline

Issue: Cognitive impairments, including dementia, can impact a senior’s ability to manage daily tasks, remember medications, and respond to emergencies.

Solution: Implementing memory aids, medication management systems, and emergency response systems can provide support. According to the Alzheimer’s Association, creating a supportive and structured environment tailored to cognitive needs is crucial (Alzheimer’s Association, 2023).

Get Help for Aging Parents

4. Inadequate Home Design

Issue: Many homes are not designed with aging in mind, which can lead to hazards such as uneven flooring, poor lighting, and narrow doorways.

Solution: Modifications like widening doorways, improving lighting, and installing non-slip flooring can make homes safer. For practical guidance on remodeling to support aging in place, refer to the Certified Aging-in-Place Specialist (CAPS) Remodeling Checklist provided by the National Association of Home Builders (NAHB). The Centers for Disease Control and Prevention (CDC) emphasizes that these changes can significantly reduce fall risks (CDC, 2023).

5. Social Isolation

Issue: Social isolation can adversely affect mental health and well-being in older adults.

Solution: Increasing social opportunities through community programs, virtual communication tools, and regular visits from family and friends can help alleviate isolation. The AARP provides resources and strategies to combat social isolation among older adults (AARP, 2023).

By proactively addressing functional issues and leveraging the expertise of an Aging Life Care Professional®, seniors can continue to live safely and comfortably in their homes.

This article was originally published by Diversified Nurse Consultants and was republished with permission.

About the Author:

Ginger Jones, RN, CMC, CNLCP, CDP is the Founder and CEO at Diversified Nurse Consultants. With extensive experience in Aging Life Care, Ginger is dedicated to helping seniors live independently and safely in their homes. Ginger is a professional member of the Aging Life Care Association and a Care Manager Certified through the National Academy of Certified Care Managers. For more information, visit Ginger’s profile or connect on Facebook.

 

long-distance caregivers need support

Caregiver Guide: Do’s and Don’ts for Engaging Loved Ones with Cognitive Decline

Caring for an older adult with cognitive difficulties, such as dementia or Alzheimer’s disease, requires patience, empathy, and a thoughtful approach to daily activities. As our loved ones with dementia might have communication challenges, we become more attuned to observing body language and facial expressions. The right activities can provide a sense of purpose, stimulate memory, and improve overall well-being. However, choosing the wrong activities can lead to frustration or confusion. This guide offers practical advice on the dos and don’ts of engaging loved ones with cognitive decline.

Engaging Loved Ones with Cognitive Decline

Do:        Simplify tasks and break them down into smaller steps.

  • For example, if your loved one enjoyed cooking, involve them in simple tasks like stirring ingredients or setting the table. This allows them to participate without feeling overwhelmed by the complexity of the activity.
  • Familiar rote tasks can provide a sense of purpose and success i.e.: folding towels or setting the table.

Don’t:        Set up for failure

  • Avoid setting high expectations for perfection or completion of tasks. The goal is engagement, not mastery. If your loved one loses interest or struggles with a task, it’s okay to move on to something else without pressure. Try active listening techniques.

Do:        Promote social interaction

Don’t:        Overwhelm with large gatherings

  • Avoid large social gatherings or unfamiliar environments that could cause sensory overload or anxiety. Instead, keep interactions small and personal, with familiar faces and settings to provide a sense of security and comfort.

Do:        Watch television: many of us utilize television for entertainment but it can often become the primary source of structure and activity for the day.

  • Watching cooking shows can be good if you are looking to improve appetite but can also cause overeating.
  • Watching nature programs with positive content is engaging, however cycle-of-life or aggressive programming (like natural disasters) can produce anxiety. Baby animal shows can be a particular favorite as there is no plot to follow.
  • Watching beloved shows can be nostalgic and comforting, and comedy skit shows also have no plot to follow.
  • Consider what types of programs are watched at different times of day – something with no speaking and just photography is good for resting, and sports might spark a desire for more activity.

Don’t:        Allow TV to cause anxiety or be a substitute for activity or personal interaction

  • Watching the news can be distressing for some and cause anxiety
  • Confrontational talk show formats can be confusing and angry participants may display unwanted behaviors.
  • Sitting in front of the TV all day isn’t good for anyone, and this is not engaging in socialization or cognitive stimulation.

Do:        Incorporate music and art

Don’t:        Use Activities that require complex decision-making

  • Avoid activities that require complex decision-making or too many choices. This can be overwhelming and may lead to frustration. Instead, offer simple, clear options that allow for easy participation. Offer a choice between two things such as menu items or daily clothing choices.

Do:        Accept help when caregiving becomes overwhelming.

Don’t:        Set your expectations too high or schedule too full.

  • Try to go with the flow and understand things might not go exactly as planned and that’s okay. Schedule in extra time for activities or to get to appointments. If you feel frustrated, step away, regain composure (your loved one if not being difficult on purpose) and try again with a new energy. Read tips on how to deal with caregiver stress.

 

As you consider what activity choices to offer your loved one, consider variety and time of day. Include exercise and socialization, as well as hygiene and rest. Modify, modify, modify. If they seem overwhelmed with an activity, try simplifying to a point they can successfully engage. For example: a puzzle with fewer and larger pieces, simple matching games, and activities to stimulate fine motor skills.

Remember not to infantilize your loved one, but rather adjust to their needs. Be mindful of your loved ones’ response to an activity and be flexible with both them and yourself.

 

About the Author: Lisa Kaufman, MS, CMC, CTRS, C-EOLD is a certified care manager, an Aging Life Care Professional, and a certified End of Life Doula. She has owned and operated SeniorCare Options since 2001, and she is a Therapeutic Recreation Specialist.

Older American Woman

Seven Signs That an Aging Parent Needs Help

Does your aging parent need help?

As an Aging Life Care™ advisor, I know how fiercely older adults want to maintain their independence. Many feel that their adult children don’t understand them or are making something out of nothing — a fall, a burnt pot, a call from the police station. They make promises to ask for help shopping, assure a son they will only drive on familiar streets, and promise to hang up when an unsolicited call for money comes in. The need to be safe and the rejection of that safety in the name of independence and dignity is a real struggle.  So how do you know when safety should outweigh the desire to appear and remain independent?

Here are seven signs that your aging parent may need help:

 

1. You come for a visit, open the refrigerator to get a glass of juice and the expiration date was three months ago. The refrigerator may have a strong odor, and the kitchen may be full of rotten food.

 

2. Mail is piling up. Bills may be going unpaid, and utilities at risk of being shut off.

 

3. You’re not sure that medications are being taken correctly, due to changes in your parent’s vision, dexterity, or memory. Pills are still in their bottles, or medication boxes seem untouched between visits. You may find medications dropped or spilled on the floor.

 

4. You’re concerned about personal hygiene. You parent may be wearing soiled clothing, bathing infrequently, and not attending to personal care tasks such as oral hygiene.

 

5. “Mother is absolutely fine,” you hear your father say. And mother automatically agrees. After fifty plus years of marriage, they have learned how to compensate for one another, and they’re arm in arm on the road to trouble.

 

6. You’re receiving concerned phone calls or emails from friends or neighbors, who may be stepping in to provide help when they can, but are frustrated.

 

7. The car has noticeable new scratches and dents, maintenance is being ignored, and you’re concerned about your parent’s ability to drive safely.

 

If you notice just one of these happening with your parent, it is time to have a conversation. If you need help starting that conversation or implementing a plan of care, consider working with an Aging Life Care Professional. Aging Life Care Professionals™ understand the frustration felt by adult children and the desperation felt by older adults who want to hold on to their independence. With an objective perspective on the situation, we can help facilitate difficult family discussions and decision-making to address these and other concerns.

To locate an Aging Life Care Expert near you, search this directory of experts by zip code.

 

About the author: Miriam Zucker, LMSW, C-ASWCM is an Aging Life Care™ Specialist. She is founder of Directions in Aging, based in Westchester County, New York.


This blog is for informational purposes only and does not constitute, nor is it intended to be a substitute for, professional advice, diagnosis, or treatment. Information on this blog does not necessarily reflect official positions of the Aging Life Care Association™and is provided “as is” without warranty. Always consult with a qualified professional with any particular questions you may have regarding your or a family member’s needs.

Senior Living Elder Daughter

A Daughter’s Perspective on Senior Living

Written by: Mary Ann Buckley MSW, LCSW-C

I have assisted many older adults in making moves to senior communities over the last 20 years. Last month I assisted my own mother in moving to a senior living community. Discussing the move, finding the perfect community, planning for, and making the actual move took on a new dimension.  I was the daughter and not the professional.

I have the benefit of knowing my own Mom throughout her adult life, compared to working with clients for a relatively brief time span. I also had the benefit of working side by side with my siblings in this process.

Moving a Parent Out of the Home

My mom and I had productive and honest in person conversations when I was at home visiting her. It was just the two of us in the house. Later in the evening, we talked about the future and her needs in a realistic manner. She shared her concerns, wishes, fears, and hopes. The same way she did when my father died suddenly 44 years ago from a massive heart attack. She was 50 years old, and I was the only child still at home when her world changed. I witnessed her work through her grief, learn to become independent, and recreate her life.

We toured a senior community, and she made her decision based on key factors that are important to her and have been her whole life. She chose a faith-based community that offered her the opportunity to attend mass and was closer to her daughters. Family and her faith are paramount to her life.

My siblings and I created a group text to allow us to stay in constant communication as we are not all in the same city. We felt that this communication was the best way to care for our mom. While I am the youngest in the family, my siblings often deferred to me for my professional advice. While I was happy to dispense advice, I had to remember that our mom is a fiercely independent woman who wants to remain that way. To her, I am her youngest daughter, not a professional.

I joined my siblings and Mom in planning what to take to her new apartment, packing up what was important to her, and then planning the actual move. I noticed during this process, she remained the mom in charge, and we remained in similar roles from childhood. My brother, the eldest, was the leader and my sisters and I were the workers. Above all, we worked together for her benefit. She bravely said a last goodbye to the house that hosted family holidays, birthdays, welcomed children, grandchildren, and great-grandchildren.

Plants Senior Living

Mom has been in her new apartment for about a month now. When I call her, I hear a calm voice, happily decorating and rearranging the apartment in just the right way. She tells me about the delicious meals and table mates, mass, and the view out her windows. She is settled and comfortable. I am fortunate to see this brave woman continue to tackle changes in her life in the manner that she always has. I’m also fortunate that I have assisted other older adults in similar moves, but this gave me a new perspective.

As with the families I work with as an Aging Life Care Manager, moving a parent out of the family home can be a challenging life event. We knew my mom would not embrace the move until she was truly ready. The move occurred in her time frame with her family fully supporting her.  This experience from this personal view, took on special meaning for me.

 

 

About the Author: Mary Ann Buckley, MSW, LCSW-C, is the director of Community Outreach and Education at Corewood Care. She is a Licensed Clinical Social Worker and Aging Life Care Manager who has over 30 years of experience in Social Work, 28 years with older adults and families and 20 of those years in Care Management. Mary Ann is a member of the Aging Life Care Association.

What Distinguishes an Aging Life Care Manager from Other Geriatric Care Managers?

Aging Life Care Management, also known as geriatric care management, focuses on improving the quality of life for older adults and their families through comprehensive planning and management of care needs. This involves addressing not only health concerns but also financial, legal, and social aspects to ensure the well-being of older adults.

Aging Life Care Professionals or Aging Life Care Managers are members of the Aging Life Care Association® (ALCA) and differ from Patient Advocates, Senior Advisors, Senior Navigators, and Elder Advocates. ALCA members must meet stringent education, experience, and certification requirements of the organization, and all members are required to adhere to a strict Code of Ethics and Standards of Practice.

Aging Life Care Managers
Aging Life Care Managers Can Help

Engaging an Aging Life Care Manager can offer numerous benefits:

1. Expertise and Knowledge

Aging Life Care Managers bring specialized knowledge and experience in elder care, ensuring that the client receives the best possible care. They are well-versed in managing conditions such as dementia, Alzheimer’s, Parkinson’s, and other chronic illnesses. For example, they can recognize early signs of cognitive decline and coordinate with healthcare providers to manage it effectively. If a family is struggling to manage the needs of a beloved relative with Alzheimer’s? An Aging Life Care Manager can provide a detailed care plan, recommend suitable memory care facilities, and ensure that the parent receives appropriate therapies to slow disease progression.

2. Stress Reduction

By handling complex care tasks and providing emotional support, Aging Life Care Managers reduce the stress and burden on family caregivers. They can step in during emergencies, offering a 24/7 point of contact, which alleviates the constant worry families often experienceStudies have shown that family caregivers often experience high levels of stress, with about 40-70% showing significant symptoms of depression (American Psychological Association). Having professional support can significantly reduce these mental health challenges.

3. Improved Outcomes

An Aging Life Care Manager’s comprehensive approach can lead to better health outcomes and enhanced quality of life for the older adult. Continuous monitoring and timely interventions can prevent hospital readmissions and manage chronic conditions effectively. Research indicates that coordinated care management can reduce hospital readmission rates by up to 20%, highlighting the effectiveness of proactive care management (Finlayson et al.).

4. Efficiency

Aging Life Care Managers streamline care processes, reducing redundancies and ensuring efficient use of resources. They help avoid unnecessary hospitalizations and inappropriate placements, which can save significant costs. For example, an Aging Life Care Manager might identify that a client’s frequent hospital visits are due to medication mismanagement and work to set up a system where medications are properly administered at home, thus reducing the need for hospital care (Yang).

Aging Life Care Professionals are distinguished by their membership in ALCA, which sets them apart through rigorous education, experience, and certification standards. Aging Life Care Professionals must meet stringent education and certification requirements, which include formal higher education in related fields such as gerontology, nursing, or social work, and professional certifications like Care Manager Certified (CMC), Certified Case Manager (CCM) . Additionally, they adhere to a strict Code of Ethics and Standards of Practice, ensuring a high level of professionalism and quality care.

Knowing when to engage the services of an Aging Life Care Professional can be challenging. Here are some indicators that it might be time to seek help:

  • The person you are caring for has multiple medical or psychological issues.
  • They are unable to live safely in their current environment.
  • They are not pleased with current care providers and require advocacy.
  • They are confused about their own financial and/or legal situation.
  • They have limited or no family support.
  • Your family is “burned out” or confused about care solutions.
  • You have limited time and/or expertise in dealing with the individual’s chronic care needs and/or do not live close by.
  • Your family is at odds regarding care decisions.
  • You need education and/or direction in dealing with behaviors associated with dementia.

When evaluating Aging Life Care Professionals, consider the following:

  • Credentials and Certification: Ensure the Aging Life Care Professional is certified and a member of ALCA.
  • Experience: Look for professionals with substantial experience in geriatric care management.
  • References and Reviews: Seek references from previous clients and read reviews to gauge their reputation and effectiveness.
  • Compatibility: Choose someone who is compatible with your family and understands your specific needs and preferences.
  • Communication Skills: Effective communication is crucial; the Aging Life Care Professional should be able to clearly explain care plans and updates.

Aging Life Care Management is not just about addressing immediate health concerns but also about providing a holistic and proactive approach to care. This includes planning for future needs, advocating for the client within the healthcare system, and supporting the family through emotional and logistical challenges.

“It’s about enhancing the overall quality of life for both the older adult and their family.”

Get Help for Aging Parents
 

Planning for healthy aging involves being proactive about your health, finances, and lifestyle choices. Here are some key pieces of advice from ALCA:

  • Maintain a Healthy Lifestyle: Prioritize regular exercise, a balanced diet, and mental health to stay physically and mentally fit.
  • Plan Financially: Save and invest wisely to ensure financial stability in your later years. Consider long-term care insurance and other financial products that can help cover future care needs.
  • Stay Informed: Educate yourself about aging and the resources available to support you. Stay connected with community services and support networks.
  • Be Proactive About Healthcare: Regular health check-ups and screenings can help detect and manage potential health issues early.
  • Build a Support Network: Cultivate strong relationships with family, friends, and community members who can provide support as you age.

Aging Life Care Management is an invaluable resource for families navigating the complexities of elder care. These professionals play a pivotal role in ensuring that older adults receive comprehensive, compassionate care while supporting and relieving the burdens on their families. By understanding and utilizing the services provided by these professionals, families can enhance the quality of life for their loved ones and themselves. For more detailed information and resources, the Aging Life Care Association website is an excellent place to start.

 

 

This article originally appeared on Pallas Care Blog, and was reposted with permission.

 

About the Author:

Ashlyn Xu, Pallas Care’s USC Leonard Davis School of Gerontology summer intern, had the opportunity to learn more about the field of Aging Life Care™. The resources provided by the Aging Life Care Association® (ALCA), a nonprofit membership association of Aging Life Care Managers®, helped her to learn how engaging a geriatric care manager can improve the quality of life for older adults.

moving aging parents and selling the house

Tips for Rightsizing not Downsizing

Practical Tips from an Expert

As many aging adults face the prospect of leaving their homes for smaller living spaces, there are a few key strategies that can make the transition happen in a much less stressful and smooth fashion. I like to think of it as rightsizing, not downsizing.

by Marie LeBlanc, BS, MBA – Aging Life Care Association™ Corporate Partner

 

Start with the basics

Often people have a very difficult time looking at empty rooms and understanding, spatially, what can actually fit.  This can be compounded by special mobility needs considerations.  We find that completing a scaled floor plan using the client’s actual furniture dimensions is critical to understanding – and accepting – what can reasonably fit in a new space.  Often there are trade-offs to be made between pieces of furniture and other belongings that have significant sentimental value since not everything will fit.  We encourage clients to start their transition journey armed with the facts needed to make solid decisions.

 

Don’t force things on loved ones

It is basic human nature to want to preserve family traditions.  However, many  clients have children with established homes filled with their own things and not much room to spare to add more from mom’s and dad’s collections.  Additionally, differences in taste, décor and lifestyle often drive the desire and need for a different style of furnishings.  We increasingly find that children may want to take on a few items – perhaps even small things that are sentimentally significant but, by and large, they cannot or do not want the things mom and dad are not taking.  Opening a general conversation early in the transition process to let the children know that there will be items “available” can lead to healthy discussion regarding what is truly desired and will be cherished rather than adding more stress to an already intense situation.

 

Purge early, purge often

For the most part, once an item – or two or three or four – are out of sight they are out of mind.  It is very easy to fill closets, attics, cellars, and garages with our stuff and never think about it again.  Until it’s time to move and then the full impact of “all that stuff” hits home.  We counsel clients to begin the effort to sort and organize early on and often as soon as they are thinking about a move.  If they can fill just one extra trash bag per week and include it with their regular pick-up or dump run, at the end of one year they will have handled enough to fill a thirty-yard dumpster.

The same concept holds true for donations and hazardous materials disposal.  Start as early as possible in the transition process to take advantage of charitable organizations’ pickups in your area.   Often they only come on a regular schedule but can only take a limited amount of stuff.   Towns will generally schedule one-to-two hazardous material drop-off dates per year.  Taking advantage of these services can save a client hundreds of dollars in disposal fees.

With solid planning and an experienced guiding hand, a client’s transition can be a positive change and the first step to a happier, more social lifestyle.

Working with an Aging Life Care Professional™ can help eliminate many of the bumps in the road. Connect with an expert in your area by visiting aginglifecare.org.

 
About the author: Marie LeBlanc, BS, MBA, is the president and owner of Transitions Liquidation Services in Hyannis, MA, a move management and rightsizing company founded in 2002.  Transitions Liquidation Services has completed over 3,0000 transitions and Marie is an active speaker on the topics of moving, rightsizing and hoarding.  Follow Marie on Facebook and LinkedIn.


This blog is for informational purposes only and does not constitute, nor is it intended to be a substitute for, professional advice, diagnosis, or treatment. Information on this blog does not necessarily reflect official positions of the Aging Life Care Association™ and is provided “as is” without warranty. Always consult with a qualified professional with any particular questions you may have regarding your or a family member’s needs.