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Dementia Diagnosis? Here’s How to Plan Ahead and Get Support

Dementia Diagnosis Are Rising — Here’s How Aging Life Care Managers Are Helping Families Cope

Listen to the podcast – Dementia Diagnosis: Now What?

As more families across the country face the reality of a dementia diagnosis, support from an Aging Life Care Manager® is becoming increasingly essential. According to a recent survey conducted by the Aging Life Care Association® (ALCA), more than 70% of Aging Life Care Professionals® serve clients with dementia in over half of their caseloads. Even more telling, 65% of those professionals are called in during the mid-stage of the disease — a time when care needs can quickly become urgent and complex.

“By the time families reach out, it’s often a crisis,” says Elyse Weber-Sacks, a practicing Aging Life Care Manager. “But it doesn’t have to be that way.”

Why Early Planning Matters

The message from Aging Life Care Managers is loud and clear: planning early can drastically improve quality of life. From legal and financial decisions to healthcare coordination, early action puts individuals and families in control.

Survey respondents shared their top advice for families and individuals facing a new dementia diagnosis:

  • Plan ahead – Organize legal, medical, and financial documents.

  • Build a care team – Include a physician, an Aging Life Care Manager, and an elder law attorney.

  • Stay engaged – Prioritize physical, mental, and social activity.

As one Aging Life Care Manager put it: “The earlier you act, the more control you have over your care and quality of life.”

Dementia diagnosis. Stages & Professional Support

Supporting the Supporters: Caregiver Wellbeing

Caring for someone with dementia can be emotionally, physically, and mentally draining. The professionals surveyed emphasized that caregiver burnout is common.

“Self-care isn’t selfish, it’s survival,” one Aging Life Care Manager shared.

Support for caregivers includes:

  • Help navigating complex healthcare decisions

  • Access to local resources and services

  • Crisis intervention

  • Referrals to resources and support groups

  • Long-term care planning

Aging Life Care Managers step in to help by coordinating care, offering support navigating complex healthcare systems, and helping families prepare for what’s ahead.

A Holistic Approach to Dementia Care

Dementia doesn’t just affect memory, it impacts nearly every aspect of a person’s life. That’s why Aging Life Care Managers take a holistic approach that includes:

  • Referrals to local resources (55%)

  • Crisis intervention (53%)

  • Health and disability support (52%)

  • Navigating family dynamics (34%)

Whether it’s choosing the right living arrangement, creating a safety plan, or navigating family conflict, these professionals bring clarity during what can feel like a chaotic and emotional time.

Recognizing the Signs of Dementia

Early detection of dementia is key to proactive planning. The Alzheimer’s Association outlines ten warning signs:

1. Memory loss that disrupts daily life

2. Difficulty planning or solving problems

3. Trouble completing familiar tasks

4. Confusion with time or place

5. Challenges with visual images and spatial relationships

6. New problems with speaking or writing

7. Misplacing items and inability to retrace steps

8. Poor judgment or decision-making

9. Withdrawal from work or social activities

10. Changes in mood or personality

If you notice one or more of these symptoms in yourself or a loved one, it may be time to reach out for help. An Aging Life Care Manager can assess the situation and guide you through next steps.

Find Help Today

The Aging Life Care Association® has nearly 2,000 members nationwide, Aging Life Care Professionals provide expert support for older adults and their families. With backgrounds in nursing, social work, gerontology, and more, these professionals are uniquely equipped to help during life’s most challenging transitions.

To find an Aging Life Care Manager near you, visit www.aginglifecare.org.

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Listen to the podcast – Dementia Diagnosis: Now What?

Balancing Caregiving and Work

 

Balancing Caregiving and Work

By Abbie Vogt, MS, CMC, PAC-C, CSA

Staying on top of your job while caring for an aging loved one can feel like a nonstop juggling act. The push and pull of duties and commitments at home and work may leave you stretched thin and worried about dropping a critical ball. You are not alone. A recent AARP and S&P Global survey found that 67% of family caregivers are struggling to manage both work and care. Here are some strategies for how you can best manage and thrive, not just survive in this seemingly intractable situation.

AT HOME

  • Seek support. List your loved one’s needs. Identify tasks that realistically can be delegated. Contact family members and friends (yours or your relatives’) and make specific requests for their help. If that doesn’t lift some of the load, consider hiring help. Ask those family members who are unable to provide hands-on support to chip in to cover the cost of care.
  • Prepare for the unexpected. Health emergencies and other challenges will occur! Keep your relative’s medical, legal, and financial papers in order.
  • Make a list of trusted helpers who can address home maintenance or technology problems for your family member. Having up-to-date records avoids last-minute panic and fretful decision making.
  • Care for yourself. Block out time in your schedule for self-care – ideally, something every day, even if it’s just 20 minutes of walking, soaking in the tub, or playing with a pet. Whatever it is that replenishes you, do it!

Caregiving and Work Aging Life Care

AT WORK

  • Advise your workplace. Be open with your employer about your caregiving role. Ask for flexibility in your hours or in working remotely. Is there a schedule that better meets your needs? Come in later, perhaps, or take a long break at lunchtime?
  • Inform your colleagues. That way, there’s no misperception of your commitment. You may also find benefits in networking with coworkers.
  • Know your rights. If your workplace has 50 or more employees, you may qualify for job-protected leave through the Family and Medical Leave Act. Ask your employer. Also, the Americans with Disabilities Act protects you from discrimination, such as being passed up for a promotion, because you are caring for a relative.

Take a step back and see what you can leverage at home and at work to relieve your stress.

CONSIDER WORKING WITH A PROFESSIONAL

Sometimes, the best way to reduce the demands of caregiving is to bring in a professional. Aging Life Care Managers® are trained professionals who help older adults and their families navigate the many challenges of aging and care. They can assess your loved one’s needs, coordinate medical and other services, help manage care transitions, connect you with trusted resources, and serve as an ongoing advocate for your family member. Having a professional who can coordinate the details and provide guidance can give family caregivers greater peace of mind while allowing them to focus on their work, their families, and their own well-being.

Caregiving and Work Aging Life Care

YOU DON’T HAVE TO DO IT ALONE

Balancing Caregiving and Work is challenging, but you do not have to manage it alone. By communicating openly, asking for support, planning ahead, and taking care of yourself, you can create a more sustainable approach to caregiving. Remember, asking for help is not a sign that you are falling short. It is an important part of balancing caregiving with your own well-being, work, and the other responsibilities that matter to you.

 

This article was originally published in the Athens Area Chamber of Commerce  and was reprinted with permission.

 

ABOUT THE AUTHOR: Abbie Vogt, MS, CMC, PAC-C, CSA, is an Advanced Professional Member of the Aging Life Care Association®. She is the owner and senior director of a•bridge: Aging Life Care™ Management. She earned her master’s degree in Gerontology in 2010 and has been a Care Manager Certified (CMC) professional since 2013. Abbie is also a Certified Senior Advisor and a Teepa Snow PAC® Independent Consultant. With decades of experience in aging services, including hospice, assisted living, dementia care, nonprofit, and home care administration, Abbie brings a creative, flexible approach to helping individuals and families navigate complex care needs.

 

Sandwich Generation Help

Sandwich Generation Help

Feeling Sandwiched? You Don’t Have to Carry It Alone.

Why Aging Life Care Professionals Are More Important Than Ever

By Anne Sansevero, RN, MA, GNP, CCM, Fellow, Aging Life Care Association®

If I could describe today’s sandwich generation in one word, it would be stretched. Stretched between Zoom meetings and doctor’s appointments. Between helping their teen fill out college applications while gently trying to convince Mom it’s no longer safe to drive. Between soccer games, aging parents, work deadlines, and the nagging feeling that someone always needs you and someone else is always waiting for you.

For millions of Americans, this isn’t an occasional juggling act. It’s everyday life. A recent New York Times article captured the emotional and financial reality facing today’s sandwich generation. Many adult children are reducing work hours, leaving careers they love, draining savings, and sacrificing their own well-being while trying to care for aging parents and raise families at the same time.

After more than 30 years working with older adults and their families, I can tell you that the greatest challenge isn’t simply the amount of caregiving. It’s that families are trying to navigate one of life’s most complicated journeys without a guide or a roadmap. The good news? You don’t have to become an expert in aging overnight. You simply need to know where to turn for trusted guidance.

Caregiving Has Changed

Today’s family caregivers are doing far more than driving to appointments or picking up groceries. They’re coordinating specialists, managing medications, navigating insurance, comparing care options, organizing legal documents, and making difficult decisions about dementia, safety, and quality of life. And all while juggling careers, raising children, nurturing relationships, and trying to get enough sleep.

It’s no wonder so many tell me they feel exhausted, isolated, and overwhelmed. The hardest part? No one prepares you for this role. There isn’t a handbook for becoming your parent’s advocate while still being there for your own family.

You Were Never Meant to Figure This Out Alone

Families often believe that once Mom or Dad is in the healthcare system, someone is guiding the journey. Unfortunately, that’s rarely the case. Hospitals are designed to treat acute medical problems, not manage the ongoing complexities of aging. Physicians focus on medical care. Home care companies provide caregivers. Attorneys handle legal matters. But families are often left trying to connect all the dots. They’re mediating disagreements between siblings, spending late nights bleary-eyed in front of a computer researching community resources, wondering if it’s still safe for Dad to live alone, or lying awake worrying about what the next phone call might bring. It’s exhausting, emotionally draining, and a responsibility few people are ever prepared for.

Sandwich Generation Help for Aging Parent Aging Life Care Manager

The Value of an Aging Life Care Professional

This is where an Aging Life Care Professional® can make all the difference. We help families connect all the moving pieces of aging. By coordinating care, advocating within the healthcare system, and creating a thoughtful plan for the future, we help prevent small problems from becoming major crises. Most importantly, we provide something every overwhelmed caregiver needs: peace of mind.

“It Sounds Wonderful…But Can We Afford It?”

It’s one of the first questions families ask me. I encourage them to think differently. An Aging Life Care Professional isn’t necessarily an ongoing expense. Often, we’re an expert guide brought in at critical moments. A comprehensive assessment, family meeting, or a few hours of guidance can prevent months of stress, family conflict, costly mistakes, and decisions made in crisis.

If there are siblings, consider sharing the investment. We can also help families uncover valuable resources such as long-term care insurance benefits, veterans’ programs, respite services, and community support that may offset the cost of care.

Waiting until a crisis almost always costs more. Investing in early planning will help families avoid unnecessary emergency room visits, premature expensive transitions of care and rushed decisions that lead to costly mistakes.

Looking Ahead

America is aging faster than ever. By 2035, adults age 65 and older are projected to outnumber children under 18 for the first time in U.S. history. At the same time, families are smaller, live farther apart, and face a growing shortage of caregivers. The result? Caring for an aging loved one is becoming increasingly complex.

If you’re part of the sandwich generation, remember this: asking for help isn’t giving up, it’s stepping up. The greatest gift you can give your loved ones isn’t trying to do everything yourself. It’s building the right team so you can spend less time managing care and more time simply being a daughter, son, spouse, or grandchild.

About the Author

Anne Sansevero, RN, MA, GNP, CCM is co-founder of Holistic HomeCare Associates and Home Care Wizards. She is a Past President & Fellow of the Aging Life Care Association®, a gerontological nurse practitioner, and a nationally recognized aging strategist. She has spent more than 30 years helping older adults and their families navigate the complexities of aging with confidence, dignity, and compassion.

 

A Collaborative Approach to Supporting Older Adults in Long Term Care Planning How Aging Life Care Managers, Elder Law Attorneys, and Financial Planners Achieve Better Outcomes Together

A Collaborative Approach to Supporting Older Adults in Long Term Care Planning

How Aging Life Care Managers, Elder Law Attorneys, and Financial Planners Achieve Better Outcomes Together

By Sue Coyle, COTA, BA, CMC

Executive Summary: Effective long-term care planning for older adults is most successful when approached through collaboration among Aging Life Care Managers® (ALCMs), Elder Law Attorneys, and Financial Planners. Aging Life Care Managers provide critical, real-world insight into clients’ health, functional abilities, family dynamics, and the true costs of care, ensuring that care plans are both practical and financially sustainable. By integrating this perspective, attorneys can develop legally sound strategies that reflect a client’s cognitive and functional reality, while financial planners can create more accurate, adaptable projections for evolving care needs. This coordinated, interdisciplinary approach reduces crises, improves alignment between care, legal and financial decisions, and alleviates stress for the Older Adult and their families, ultimately supporting them in maintaining dignity, independence, and long-term security.

 

Experienced Aging Life Care Managers® (ALCMs) play a vital role in helping older adults and their families navigate care needs, housing decisions, and quality-of-life concerns. Aging Life Care Managers, also known as Geriatric Care Managers, are health and human services professionals who are knowledgeable in aging, disabilities, community services, interpersonal systems and interventions, legal and financial programs. ALCMs must follow a code of ethics to be a member of the Aging Life Care Association.

While medical, personal, and psychosocial needs often take center stage, financial considerations are equally critical in developing sustainable plans for care. That is why collaboration is essential with Elder Law Attorneys and Financial Planners. When these professionals work together, older adults receive more coordinated guidance, fewer crises occur, and long-term outcomes are significantly improved and sustained.

Financial Realities Are a Factor to Every Care Decision

Every care recommendation exists within a financial context. Whether a client hopes to age in place with home care, transition to assisted living, or prepare for skilled nursing, each option carries distinct costs, eligibility factors, and long-term implications.

An Aging Life Care Manager brings practical, real-world insight and knowledge that helps ensure care plans remain financially viable over time. This insight includes:

  • Local, up-to-date costs of care and housing
  • Anticipated progression of care needs
  • Family dynamics that influence decision-making
  • Early identification of risks such as caregiver burnout, financial exploitation, or crisis placements
  • Advocacy for the client’s needs and wishes
  • Guidance on Long-Term care insurance plans to qualify and/or appeal
  • Crisis management of healthcare situations

By incorporating this information into legal and financial planning, professionals can move beyond theory and create strategies that reflect a client’s real-life circumstances.

Aging Life Care Planners

How Aging Life Care Managers Can Complement Elder Law Attorneys

Elder Law attorneys focus on protecting clients through estate planning, powers of attorney, guardianship, special needs planning, and Medicaid strategies. Aging Life Care Managers strengthen this work by grounding legal solutions in the client’s functional and cognitive reality.

Key areas of collaboration include:

  • Functional and cognitive assessments that inform legal capacity, timing, and appropriate safeguards
  • Risk identification that helps attorneys proactively address issues before crisis intervention or guardianship is required
  • Support for capacity-sensitive planning, offering observations that help attorneys act ethically and responsibly as determined by client’s cognitive status
  • Post-planning implementation, assisting clients/families in carrying out care plans once legal documents are in place
  • Determine appropriate care type and venue, coordinate and assist in transition/s

This partnership allows Elder Law attorneys to deliver legal solutions that are not only sound, but also practical from a functional standpoint.

The Value Aging Life Care Managers Provide to Financial Planners

Financial Planners are tasked with helping clients protect assets and plan for the future. Aging Life Care Managers contribute by translating care needs into realistic cost projections that evolve over time.

Benefits to Financial Planners include:

  • Accurate care cost forecasting based on health trends and local costs rather than generalized averages
  • Scenario planning for different care pathways, including potential transitions
  • Family communication support, helping reduce conflict around emotionally charged financial discussions and decisions
  • Ongoing care monitoring, allowing financial strategies to adapt as needs change
  • Determine and assist in the transition to alternate living or care

 

With an Aging Life Care Manager involved, financial plans are more resilient, responsive, and aligned with the client’s changing circumstances.

Improved Outcomes for Clients and Families

When Aging Life Care Managers, Elder Law attorneys, and Financial Planners collaborate, shared clients experience:

  • Fewer emergencies and last-minute decisions
  • Better understanding of care and financial trade-offs
  • Stronger alignment between care needs, legal planning, and financial resources
  • Reduced stress for the client, family caregivers, and adult children

This integrated, client-centered approach offers stability during a life stage that is often marked by uncertainty and emotional strain.

A Trusted Professional Partnership

Effective collaboration is built on trust, communication, and shared commitment to client well-being. Aging Life Care Managers serve not only as care experts, but as collaborative partners who enhance the work of legal and financial professionals.

By aligning care management expertise with legal and financial planning, professionals can deliver comprehensive solutions that protect dignity, independence, and long-term security for older adults and their families.

About the Author: Sue Coyle, COTA, BA, CMC is the owner and Certified Aging Life Care Manager at her own business, Coyle Care Management and Consulting, LLC, which she founded 15 years ago. She is an Occupational Therapy Assistant by background, with a Bachelor’s Degree in Healthcare Management. She has worked in many aspects of Elder Care for over forty years. She’s based out of Appleton, WI, and serves an approximate 50-mile radius, but often assists family members throughout the country. She can be reached at www.coylecaremanagement.com, sue@coylecaremanagement.com, or LinkedIn at: https://www.linkedin.com/in/sue-coyle-cota-ba-cmc-57383b14/

Help for an older parent Aging Life Care

What to Do When Your Parent Says, “I’m Fine, I Don’t Need Help”

By Lina Supnet-Zapata, MBA, CMC, TxCG
Aging Life Care Manager® and 2026 President-Elect, Aging Life Care Association®

You’ve noticed things that concern you.

The unopened mail stacking up on the kitchen counter. Forgotten conversations. Missed medications. A refrigerator filled with expired food. Maybe your parent seems more withdrawn than usual, or perhaps you are noticing changes during visits that weren’t there six months ago.

You gently bring it up.

“I’m worried about you.”

And the response comes quickly:

“I’m fine. I don’t need help.”

If this sounds familiar, you are not alone.

For many adult children, starting conversations about aging, care, and future planning can feel uncomfortable, emotional, and sometimes impossible. Yet these conversations are some of the most important ones families can have, especially before a health crisis forces urgent decisions.

The good news? This does not have to be one difficult conversation. It can be the beginning of an ongoing dialogue.

Why Families Delay the Conversation

One of the biggest misconceptions adult children have is believing there will be a “right time” to talk.

Often, parents avoid these conversations because they feel independent and capable. Some do not want their adult children involved in personal health or financial matters. Others simply struggle with what aging represents: change, vulnerability, and the reality of mortality.

Many families tell themselves:

  • “Nothing major has happened yet.”
  • “Dad still seems okay.”
  • “Mom would tell me if something was wrong.”

But waiting until a crisis happens can create emotional strain, financial stress, and difficult family dynamics.

When there is no plan, families often find themselves making rushed decisions in emergency rooms, navigating confusion about legal authority, or scrambling to figure out finances and care options.

Planning ahead creates clarity and peace of mind.

The 40/70 Rule: Why Earlier Conversations Matter

I often encourage families to think about what I call the 40/70 Rule.

If the adult child is in their 40s and their parent is in their 70s, it is time to begin the conversation.

Not because something is wrong.

Because planning works best before something happens.

This stage of life provides an opportunity to begin talking informally about wishes, preferences, and future care. The goal is not to take control away from your parent. The goal is to understand how they want to age and how they would want support if circumstances changed.

Signs It May Be Time to Start the Conversation

You do not need to wait for a major medical event.

In fact, some of the most important warning signs appear quietly in everyday life.

Adult children often notice changes during holiday visits, vacations, or trips back home.

Common signs include:

Memory and Cognition

  • Forgetting conversations that happened recently
  • Missing appointments
  • Increased confusion or forgetfulness
  • Repeating stories multiple times

Financial Changes

  • Unopened mail piling up
  • Missed bills or late payments
  • Unusual spending habits
  • Increased anxiety or paranoia around finances

Physical and Personal Care

  • Declining hygiene or refusal to bathe
  • Noticeable weight loss
  • Poor nutrition or relying on sweets instead of balanced meals
  • Mobility changes or increased falls

Home and Social Changes

  • Difficulty maintaining the home
  • Increased isolation or withdrawal
  • Reduced participation in activities they once enjoyed
  • Safety concerns around driving

Sometimes these changes happen gradually, making them easy to dismiss. But taken together, they can indicate it is time to begin a conversation.

What a Good Early Conversation Should Cover

The best conversations are not formal interrogations.

They are conversational.

Instead of sitting down for one heavy, emotionally loaded discussion, try smaller conversations over time.

You might ask:

  • “If there was an emergency, how would you want me to help?”
  • “Have you thought about what you would want if staying at home became difficult?”
  • “Who should the doctor call if something happens?”
  • “Where do you keep important paperwork?”

Some of the most important topics families should understand early include:

Legal and Healthcare Planning

Families should know:

  • Who is named as the medical power of attorney
  • Who is named as the financial power of attorney
  • Whether advance directives are completed
  • Where important documents are stored
  • Whether appointed agents have copies

During emergencies, many families discover too late that siblings don’t know who has decision-making authority or where documents were located. That confusion can create avoidable family conflict during already stressful times.

I don't need help aging care

Medical Information

Adult children should understand:

  • Healthcare providers involved in care
  • Current medications
  • Existing medical conditions
  • Emergency contacts and preferred hospitals

Financial Logistics

It is also important to discuss practical questions:

If care is ever needed, how would your parent want finances handled?

Would someone need temporary access to funds to help pay for medications, caregiving, equipment, or healthcare expenses?

These conversations may feel uncomfortable at first, but discussing preferences ahead of time preserves dignity and reduces confusion later.

What to Do When Your Parent Says, “I’m Fine”

When a parent resists help, pushing harder usually backfires.

Resistance often comes from fear, loss of independence, or concern about losing control.

Instead of arguing, focus on staying connected.

Try these approaches:

Keep the Conversation Gentle

Avoid statements that feel critical.

Instead of:

“You can’t manage on your own anymore.”

Try:

“I want to make sure I understand what matters most to you.”

Curiosity is often more effective than correction.

Start Small

You do not have to solve everything immediately.

A conversation about emergency contacts today may eventually lead to discussions about healthcare wishes, finances, or caregiving support.

Think of this as an ongoing dialogue, not a one-time event.

Observe and Prepare

Even if your parent refuses help, preparation still matters.

If support is declined, adult children can still gather information, research resources, and begin building a plan.

Because eventually, a medical event, hospitalization, or urgent need often does happen.

Planning from a place of calm is always better than reacting in crisis mode.

When to Bring in an Aging Life Care Professional®

Sometimes families need a neutral third party.

This is especially true when:

  • Family dynamics are complicated
  • Adult children live far away
  • A parent resists advice from family
  • is not pleased with current care providers and requires advocacy
  • is confused about their own financial and/or legal situation
  • Care needs feel overwhelming
  • Siblings disagree on next steps

An Aging Life Care Professional® can help families create what I often call a road map for care.

We help identify potential challenges before they become a crisis, coordinate moving parts, advocate for older adults, and guide families through difficult decisions.

You can think of an Aging Life Care Professional as the “air traffic control” for aging care, helping families navigate healthcare, housing, resources, safety concerns, and long-term planning.

For long-distance caregivers, this support can be especially valuable. Knowing someone local is helping oversee care and advocate for your parent can bring tremendous peace of mind.

How to Introduce the Idea Without Triggering Resistance

Parents may resist the idea of “help.”

So avoid framing it that way.

Instead, try:

“This isn’t about taking over. I just want us to have a plan in case something unexpected happens.”

Or:

“Let’s talk to someone who understands aging and planning, just so we know what options exist.”

Many Aging Life Care practices offer introductory consultations, allowing families to ask questions without pressure or commitment.

Sometimes simply hearing options from a trusted professional can make the conversation feel less intimidating.

Start Before You Need To

If there is one message I hope families take away, it is this:

Do not wait for a crisis.

Care conversations are not about giving up independence. They are about preserving choice.

The earlier families begin talking, the more opportunity parents have to express what matters to them and how they want to age.

Start small.

Stay curious.

Keep the conversation going.

Because the best care plans begin long before they are needed.

Care Management

About the Author

Lina Supnet-Zapata, MBA, CMC, TxCG, is CEO of Mir Senior Care Management, Inc. & Care Consultants in Austin, Texas. An Advanced Professional member of the Aging Life Care Association® (ALCA) since 2016, Lina is a Care Manager Certified (CMC) professional through NACCM and a Certified Texas Private Professional Guardian. She currently serves on the ALCA Board of Directors and the Board of Directors for AGE of Central Texas. In 2022, she received the Joyce Lauck Legacy Award for her dedication to improving the lives of older adults and family caregivers.

Older American Woman

Seven Signs That an Aging Parent Needs Help

Does your aging parent need help?

As an Aging Life Care™ advisor, I know how fiercely older adults want to maintain their independence. Many feel that their adult children don’t understand them or are making something out of nothing — a fall, a burnt pot, a call from the police station. They make promises to ask for help shopping, assure a son they will only drive on familiar streets, and promise to hang up when an unsolicited call for money comes in. The need to be safe and the rejection of that safety in the name of independence and dignity is a real struggle.  So how do you know when safety should outweigh the desire to appear and remain independent?

Here are seven signs that your aging parent may need help:

 

1. You come for a visit, open the refrigerator to get a glass of juice and the expiration date was three months ago. The refrigerator may have a strong odor, and the kitchen may be full of rotten food.

 

2. Mail is piling up. Bills may be going unpaid, and utilities at risk of being shut off.

 

3. You’re not sure that medications are being taken correctly, due to changes in your parent’s vision, dexterity, or memory. Pills are still in their bottles, or medication boxes seem untouched between visits. You may find medications dropped or spilled on the floor.

 

4. You’re concerned about personal hygiene. You parent may be wearing soiled clothing, bathing infrequently, and not attending to personal care tasks such as oral hygiene.

 

5. “Mother is absolutely fine,” you hear your father say. And mother automatically agrees. After fifty plus years of marriage, they have learned how to compensate for one another, and they’re arm in arm on the road to trouble.

 

6. You’re receiving concerned phone calls or emails from friends or neighbors, who may be stepping in to provide help when they can, but are frustrated.

 

7. The car has noticeable new scratches and dents, maintenance is being ignored, and you’re concerned about your parent’s ability to drive safely.

 

If you notice just one of these happening with your parent, it is time to have a conversation. If you need help starting that conversation or implementing a plan of care, consider working with an Aging Life Care Professional. Aging Life Care Professionals™ understand the frustration felt by adult children and the desperation felt by older adults who want to hold on to their independence. With an objective perspective on the situation, we can help facilitate difficult family discussions and decision-making to address these and other concerns.

To locate an Aging Life Care Expert near you, search this directory of experts by zip code.

 

About the author: Miriam Zucker, LMSW, C-ASWCM is an Aging Life Care™ Specialist. She is founder of Directions in Aging, based in Westchester County, New York.


This blog is for informational purposes only and does not constitute, nor is it intended to be a substitute for, professional advice, diagnosis, or treatment. Information on this blog does not necessarily reflect official positions of the Aging Life Care Association™and is provided “as is” without warranty. Always consult with a qualified professional with any particular questions you may have regarding your or a family member’s needs.

long-distance caregivers need support

Caregiver Guide: Do’s and Don’ts for Engaging Loved Ones with Cognitive Decline

Caring for an older adult with cognitive difficulties, such as dementia or Alzheimer’s disease, requires patience, empathy, and a thoughtful approach to daily activities. As our loved ones with dementia might have communication challenges, we become more attuned to observing body language and facial expressions. The right activities can provide a sense of purpose, stimulate memory, and improve overall well-being. However, choosing the wrong activities can lead to frustration or confusion. This guide offers practical advice on the dos and don’ts of engaging loved ones with cognitive decline.

Engaging Loved Ones with Cognitive Decline

Do:        Simplify tasks and break them down into smaller steps.

  • For example, if your loved one enjoyed cooking, involve them in simple tasks like stirring ingredients or setting the table. This allows them to participate without feeling overwhelmed by the complexity of the activity.
  • Familiar rote tasks can provide a sense of purpose and success i.e.: folding towels or setting the table.

Don’t:        Set up for failure

  • Avoid setting high expectations for perfection or completion of tasks. The goal is engagement, not mastery. If your loved one loses interest or struggles with a task, it’s okay to move on to something else without pressure. Try active listening techniques.

Do:        Promote social interaction

Don’t:        Overwhelm with large gatherings

  • Avoid large social gatherings or unfamiliar environments that could cause sensory overload or anxiety. Instead, keep interactions small and personal, with familiar faces and settings to provide a sense of security and comfort.

Do:        Watch television: many of us utilize television for entertainment but it can often become the primary source of structure and activity for the day.

  • Watching cooking shows can be good if you are looking to improve appetite but can also cause overeating.
  • Watching nature programs with positive content is engaging, however cycle-of-life or aggressive programming (like natural disasters) can produce anxiety. Baby animal shows can be a particular favorite as there is no plot to follow.
  • Watching beloved shows can be nostalgic and comforting, and comedy skit shows also have no plot to follow.
  • Consider what types of programs are watched at different times of day – something with no speaking and just photography is good for resting, and sports might spark a desire for more activity.

Don’t:        Allow TV to cause anxiety or be a substitute for activity or personal interaction

  • Watching the news can be distressing for some and cause anxiety
  • Confrontational talk show formats can be confusing and angry participants may display unwanted behaviors.
  • Sitting in front of the TV all day isn’t good for anyone, and this is not engaging in socialization or cognitive stimulation.

Do:        Incorporate music and art

Don’t:        Use Activities that require complex decision-making

  • Avoid activities that require complex decision-making or too many choices. This can be overwhelming and may lead to frustration. Instead, offer simple, clear options that allow for easy participation. Offer a choice between two things such as menu items or daily clothing choices.

Do:        Accept help when caregiving becomes overwhelming.

Don’t:        Set your expectations too high or schedule too full.

  • Try to go with the flow and understand things might not go exactly as planned and that’s okay. Schedule in extra time for activities or to get to appointments. If you feel frustrated, step away, regain composure (your loved one if not being difficult on purpose) and try again with a new energy. Read tips on how to deal with caregiver stress.

 

As you consider what activity choices to offer your loved one, consider variety and time of day. Include exercise and socialization, as well as hygiene and rest. Modify, modify, modify. If they seem overwhelmed with an activity, try simplifying to a point they can successfully engage. For example: a puzzle with fewer and larger pieces, simple matching games, and activities to stimulate fine motor skills.

Remember not to infantilize your loved one, but rather adjust to their needs. Be mindful of your loved ones’ response to an activity and be flexible with both them and yourself.

 

About the Author: Lisa Kaufman, MS, CMC, CTRS, C-EOLD is a certified care manager, an Aging Life Care Professional, and a certified End of Life Doula. She has owned and operated SeniorCare Options since 2001, and she is a Therapeutic Recreation Specialist.

Free ‘Ask an Aging Life Care Manager®’ Virtual Sessions in May

Free “Ask an Aging Life Care Manager” virtual sessions to be held most Fridays in May to celebrate National Aging Life Care™ Month and Older Americans Month. Participants can ask professional Aging Life Care Managers® their questions about aging and care planning. Registration is necessary and is on a first come, first served basis at aginglifecare.org.

In response to the increasing complexities of the aging journey and the rising trend of “solo agers,” the Aging Life Care Association® (ALCA) is offering a new initiative to provide vital support for family caregivers and individuals navigating the challenges of aging. To celebrate May as National Aging Life Care™ Month, ALCA will host free, virtual small group sessions, allowing participants to engage with experts, ask questions, and gain insights into aging and care planning.

“It’s often an emergency or health diagnosis that pushes families to talk about care planning. Without a clear understanding of their loved ones’ needs or effective advocacy strategies, they can quickly become overwhelmed.”

Event Details:

  • What: “Ask an Aging Life Care Manager” Series
  • When: Fridays — May 1, May 8, May 15, and May 29 (no session May 22)
  • Time: 4pm ET
  • Where: Virtual Session (Registration Required)
  • Registration: Visit aginglifecare.org to register

Nina Pflumm Herndon, MA, CMC, CLPF, CPG, President of ALCA’s Board of Directors, states, “Whether you’re caring for an aging parent, preparing for your own future as a solo-ager, or simply curious about the resources available, these sessions are designed to provide clarity, comfort, and connection to available resources.”

With the “Ask an Aging Life Care Manager” series, ALCA emphasizes the importance of open discussions and proactive planning to alleviate financial burdens and reduce stress for all parties involved.

Ask an Aging Life Care Manager:

“Ask an Aging Life Care Manager” series is a complimentary virtual platform to introduce people to the resources and services offered by Aging Life Care Professionals®. These experts offer a holistic, client-centered approach to care, specializing in crisis intervention, housing, health and disability, advocacy, family legal needs, and financial and local resources.

ALCA CEO Julie Wagner hopes these conversations will raise awareness about the Aging Life Care field, emphasizing, “With a growing number of individuals choosing to ‘solo age’ or live apart from immediate family, ALCA wants people to know that help is available.”

Registration for the “Ask an Aging Life Care Manager” series is open now and will be filled on a first-come, first-serve basis.

Click here for more information and to register.

About the Aging Life Care Association® (ALCA)
The Aging Life Care Association® (ALCA) was formed in 1985 to advance dignified, coordinated care for older adults in the United States. With nearly 2,000 members nationwide, Aging Life Care Professionals® have cared for about two million older adults over its history. ALCA Members are distinguished from others practicing care management as they must meet stringent education, experience, and certification requirements. Members may be trained in several fields including, but not limited to counseling, gerontology, mental health, nursing, occupational therapy, physical therapy, psychology, or social work; with a specialized focus on issues related to aging and elder care.

When Siblings Clash Over a Parent’s Care

By Dr. Jennifer Gazda, LCSW, NCG, CMC, CDP

When Siblings Clash Over a Parent’s Care

In a perfect world, families would all agree and get along with each other during stressful situations or times of transition. Unfortunately, this is not often the case and not that uncommon. Families are in a constant state of change as there are transitions as we age and experience different stages of life. When an aging parent needs assistance, it is typically the children of the parent(s) who work together to make decisions.

What happens when the adult children disagree and cannot come up with a plan to support their loved one?

How can an Aging Life Care Professional assist in navigating the decision-making process and move towards a positive outcome?

From personal experience, I find that adult children, sibilings, and extended family often make decisions for their parents instead of including them in the discussion. It is not meant to be with ill intention, but we are quick to try to find solutions to problems and move on. For example, let’s consider Joe* who is starting to show signs of cognitive decline. One child may want to move Joe to an assisted living facility and another child wants him to move into their house, but Joe has said for years he does not want to live anywhere else. Who gets to make this decision? Even if it’s unanimous among the family to move Joe, how are you going to physically have him leave his home when he is adamant to not leave? These types of decisions impact families in many ways and can cause family tension, which only further exacerbates the problem.

When navigating difficult conversations with adult children, especially around aging parents or care decisions, thoughtful communication and mediation can make all the difference. Whether you’re a professional, a designated decision-maker, or a family member trying to help, here are key principles to guide productive and respectful discussions.
 

Make Space for Every Voice

Adult children often bring different perspectives shaped by their subjective experiences and emotions. Allowing time for each person to share their thoughts, without interruption, builds trust and reduces defensiveness. Even when disagreements arise, being heard can lower tension and move the conversation forward.
 

Consider the Challenges of the Power of Attorney (POA)

When a Power of Attorney (POA) has been appointed, their role can be both essential and challenging. They may face criticism or frustration from siblings who feel left out or disagree with decisions. Supporting the POA sometimes means helping absorb complaints, reinforcing that decisions are being made in good faith, and reminding everyone of the legal and ethical responsibilities involved. An Aging Life Care Professional can support the POA through these challenging situations with an aim to prevent burnout and preserve family relationships.
 

Education About Aging and Disease

Misunderstandings about the aging process or specific medical conditions can fuel conflict. Providing clear, accessible education about what is normal aging versus disease-related change helps set realistic expectations. When families understand cognitive decline, mobility limitations, or chronic illness progression, they’re often better equipped to respond with empathy rather than resistance.


 

Center the Conversation on the Older Adult

In emotionally charged discussions, it’s easy for family dynamics to overshadow the person at the heart of the matter. Always return to the most important question: What does the individual want? Their preferences, values, and quality of life goals should guide every decision whenever possible to allow for dignity and autonomy of the person.

As an Aging Life Care Professional, I have had the opportunity to work with many families over the years. Even the closest of siblings experience struggles and challenges at times, and it is one of the best parts of my work to help support families through these discussions. It can be especially difficult and frustrating for adult children when they live a long distance away from their aging parents. Emotions run strong when you cannot take a quick drive to go check in or when there is a crisis and you are not receiving updates as quickly as you would like. It also may feel like you are excluded from being involved in decisions because you are not physically present with your parents. In the work I have been able to do with families that are not local, I have been able to not only advocate and support the older adult client, but also provide real time updates to the long distance child and give reassurance.

If you are experiencing difficulty with communicating with your siblings or other relatives about someone’s care, I encourage you to reach out to an Aging Life Care Manager. We are able to provide objectivity and sound guidance as you navigate through any challenging situation.

To find an Aging Life Care Manager near you and get the support your family needs, visit the Aging Life Care Association’s “Find an Expert” directory.
 
About the Author
Jennifer Gazda, DSW, LCSW, NCG, CMC, CDP, is the Director of Integrated Care Management and Home Care at Arosa. With more than 20 years of experience, she specializes in Aging Life Care management, clinical supervision, and supporting older adults and individuals with complex needs. Dr. Gazda is also an Adjunct Professor at Aurora University and an active leader in several professional organizations. She is an Advanced Professional member of the Aging Life Care Association and serves on the Board of Directors for the Midwest Chapter.

Is Aging Life Care Management only for Older Adults?

When many people hear the term Aging Life Care management, they instinctively picture older adults, often someone with multiple medical conditions, declining mobility or cognition, or the need for long-term support.

While older adults absolutely benefit from Aging Life Care management services, this narrow definition misses the bigger truth: At its core, Aging Life Care management isn’t about age, it’s about navigating complexity with expertise, advocacy, and compassion.

In reality, many Aging Life Care Managers work with individuals who are younger, sometimes much younger, navigating medical, psychiatric, developmental, or life-altering challenges that require coordination, advocacy, and sustained support.

At its core, Aging Life Care management is a skill set. And that skill set applies across the lifespan.

The Common Thread: Complexity, Transitions, and Vulnerability

Aging Life Care management exists to support people when systems become overwhelming. This can happen at 25 just as easily as at 85.

Younger adults often face:

  • Fragmented medical and mental health systems
  • Insurance and benefits confusion
  • Poor communication between providers
  • Life disruptions that affect work, family, housing, and finances
  • A lack of advocates during moments when they are least able to self-advocate

Whether someone is recovering from a traumatic injury, managing a serious psychiatric diagnosis, or living with an intellectual or developmental disability, the need is the same: someone who understands the system and can how to navigate it effectively.

Psychiatric Diagnoses Don’t Exist in a Vacuum

Mental health conditions, such as bipolar disorder, major depression, schizophrenia, or severe anxiety, often impact far more than mood or behavior. They affect medication management, employment stability, housing security, family dynamics, and physical health.

For younger adults with psychiatric diagnoses, Aging Life Care management can provide:

  • Coordination between psychiatry, primary care, therapy, and social services
  • Support during hospitalizations or transitions between levels of care
  • Medication oversight and advocacy regarding side effects or adherence challenges
  • Advocacy during moments when symptoms make communication difficult
  • Family education and support to reduce burnout and crisis cycles

Without coordinated support, people often fall through the cracks, cycling through emergency care rather than receiving proactive, stabilizing help.

An Aging Life Care Manager can step in to change that trajectory.

Supporting Adults with IDD: Beyond the Pediatric Cliff

Adults with intellectual and developmental disabilities (IDD) frequently experience a sharp drop-off in support after childhood services end. Families are suddenly expected to navigate adult healthcare, benefits, housing options, and community resources with far less guidance.

Aging Life Care management for adults with IDD may include:

  • Navigating Medicaid waivers and eligibility
  • Coordinating medical, behavioral, and specialty care
  • Supporting independent or supported living arrangements
  • Advocating for appropriate accommodations and services
  • Helping families plan for long-term stability and transitions

This work is not about aging, it’s about ensuring dignity, continuity, and quality of life across adulthood.

Care Navigation During Injury or Illness

A sudden injury or serious illness can turn a young adult’s life upside down overnight. Hospitalizations, surgeries, rehab, insurance appeals, and return-to-work planning can quickly become overwhelming, especially when someone is trying to heal.

Aging Life Care

Aging Life Care management during these moments can involve:

  • Coordinating care across hospitals, specialists, and rehab providers
  • Clarifying treatment plans and next steps
  • Managing insurance approvals and documentation
  • Supporting recovery at home and preventing setbacks
  • Helping individuals and families regain a sense of control

These are transitional moments where expertise used in care becomes just as critical for younger individuals.

The Skill Set Is the Same, The Context Is Different

What makes Aging Life Care management effective isn’t the age of the client, it’s the ability to:

  • See the whole person, not just the diagnosis
  • Anticipate gaps in care before they become crises
  • Translate complex systems into clear, actionable plans
  • Advocate calmly and persistently across institutions
  • Build trust with clients and families during vulnerable moments

Those skills don’t expire at a certain birthday.

Rethinking Who Aging Life Care Is For

When Aging Life Care management is framed only as a service for older adults, younger people who could benefit often don’t realize support is available, or assume they should be able to handle things on their own.

Needing help is not a failure. It’s a recognition that modern healthcare and social systems are complicated, and that no one should have to navigate them alone.

Aging Life Care management is for people:

  • Experiencing complexity
  • Facing transitions
  • Managing chronic or life-altering conditions
  • Supporting loved ones while balancing their own lives

That includes older adults and it includes many people who are not.

Expanding the Conversation

When we expand our understanding, we expand access, and ultimately, outcomes.

Aging Life Care management isn’t about how old someone is. It’s about meeting people where they are, with the right expertise, at the moment they need it most.

Finding the right support doesn’t have to feel overwhelming. An Aging Life Care Manager can help you make sense of complex situations, coordinate care, and advocate for the best possible outcomes, no matter your age or diagnosis.

If you or a loved one could benefit from expert guidance, use the Aging Life Care Association’s Find an Expert tool to connect with a qualified professional in your area and take the first step toward clarity and peace of mind.

About the Author:

Catherine Vergara, RN, BSN, TxCG, CCM is an Advanced Professional Member of the Aging Life Care Association® and is the CEO of CareFor. With a strong clinical background and expertise in care management, guardianship and nursing, Catherine is known for developing tailored care strategies, fostering strong client relationships, and guiding individuals and families through complex healthcare decisions with clarity and compassion.